Caleb's hands at birth.

Caleb's hands at birth.

Wednesday, October 20, 2010

Helmets Can Be Cute!

Caleb grew, and he grew and he grew and he grew! And at one and a half years old, I can hardly keep up! This little toddler keeps me on my toes, and is ready to turn the big 2!
As of now, Caleb is all done with the hand surgeries.  We have noticed that he lacks some feeling in his palms. Hopefully he will grow out of this. And if not I am sure there is a procedure that can help get some feeling back. He can't feel heat with his palms, so I have taught him to feel heat with the back of his hands. If he were to put his palms on a stove burner, he would not feel 95% of it. This scares me.
When Caleb was around eight months old, we began noticing his head shape, and how it would not stop growing. The shape of his head was not normal at all. I would tell his pediatrician about my findings, and she said that he would grow out of it. The picture above and on the right is exactly what Caleb's head looks like. Caleb has not grown out of it. At eighteen months of age, Caleb started having seizures. Thats when I began to pressure the doctors further into his condition. I have blogged earlier about syndactyly and syndromes and conditions that are linked to it. Well, cranial-deformity is one of them, and the most common. Sometimes I feel like I am doing more work than the doctors are! I finally got the help I needed, and was reffered to a neurosurgeon!  I am still is the refferal stage, so I have not seen the specialist yet. The military motto is "wait...and wait some more!". Everything in the military is a lengthy process. But I can't complain, because the bills are all taken care of for us. What a blessing.  Caleb could have one of two things as of now, Craniosyntesis, or Positional Head Deformity. These deformities are are fixed by a special forming helmet, or if the deformity is severe, surgery.  What ever obstacle is next, we are in the preperation stage. We have done the research, and know what to expect. If Caleb has to wear a helmet, O'well! And if its surgery, we will pray and kiss all of his scars, and thank God he still with us!  I will be blogging again about his neurology appointment! Stay tuned, and thank you for reading!

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