Caleb's hands at birth.

Caleb's hands at birth.

Thursday, January 26, 2012

Updates, and Rambling..

Hello to all friends and family! I haven't updated the blog in a long time. We have gone through some personal battles in the last year, and gradually coming out on top! The kids and I are currently living in Pensacola Florida where I am from.

September of 2010 Caleb had his first seizure, with another one following in October. (Yes, it has been a long time since I have updated) Our pediatrician sent us to Savannah GA, to run more in depth tests, and to see the Nuerologist. We did an over-night sleep study and found out that Caleb has a lot of seizure activity while he sleeps. No other troubling causes were found. Caleb is not taking any daily medication, due to the devastating effects it has on young kids such as Caleb. On the other hand we do have medication to stop the seizures lasting more than 45 seconds. If seizures last more than a minute, the brain suffers in many ways. And today...Caleb goes to school with no problems with his hands, and his other minor deformities. He plays well with the other children, and he is a favorite with all the teachers! I can't believe he will be three in Feb.! Where does the time go?

Madison and Cameron are doing really well. Madison is in 6th grade, making A and B honor roll. She plays Soccer for the Texans (an elite soccer club here in Pensacola). Cameron is in kindergarten, where he is giving the teachers a run for their money. He makes all S's, which means satisfactory. He has a hard time concentrating and following directions. We are working on this....everyday.

Just a little reminder of why this blog exists...
The Caleb's Story Foundation is a blog following the life of a little boy who has gone through medical hurdles. I wanted to raise awareness of the deformities in birth like syndactyly. But there are so many more! Cleft pallets..etc. No matter the deformity, these children are still so beautiful! My photography buisness will take beautiful pictures of your child and family at no charge. I also work with Operation Smile, who performs surgery on children in third world countries, with the cost of pennies. The Caleb Foundation has raised more than $500 that has paid for two children to have facial reconstructive surgery. I couldn't be more proud. Thank you for taking the time to look at our blog! There is merchandise at the bottom of this blog, please take a look! 20% of the proceeds go to Operation Smile and their wonderful organization. God bless..

1 comment:

  1. My son has syndactyly. Do you have an email account? I'd love to connect through email or facebook and talk about our boys :)

    You can see my baby here:
    http://www.mysweetchaos.com/search/label/Syndactyly%20Type%20III

    ReplyDelete